well it’s been a bit of a drab and dreary day here in costa rica. it didn’t do the normal sunny, hot morning here and it’s basically been cloudy and raining all day long. and i myself have been feeling a little like the weather today; drab and dreary. we did decide to head out …
well i’m back in my usual evening spot by the pool. the weather here is so beautiful. it’s the rainy season so every day it gets real hot and sunny in the morning, then like clockwork at about 1pm it pours down rain for the afternoon, then we get this moment in the evenings of …
so, cate, erinn and i are sitting at our dinner table by the pool with the most beautiful breeze and listening to what may be the worst ever spanish band of all time. it’s so bad it’s absolutely hilarious. they’ve been setting up for the past half hour or so and we decided to stay …
so i’ve been a little worried, due to some of the stuff that i’ve been writing lately, that our friends think that our entire lives are doom and gloom, nothing but heartache and pain and struggle. while it’s obviously true that we are in a difficult season in our lives with lots of anxiety around …
so one of the main issues that come along with living with MS is that i don’t actually look sick. in the past year or so since MS has become more front and centre in my life and i have had to tell people that i have the disease, people who have known me for …
So it’s exacty three weeks today, 21 days, from the time I will be in a hospital in Costa Rica, lying on a bed, and having the ‘liberation procedure’ done on me. And the days are going very slowly by. I’m so unable to process all of the thoughts running through my head on a …
so i thought i’d take a little time every few days over the coming weeks to try and journal my thoughts on my (and erinn’s) life for the past 13 years with MS, my joys and pains along the way, my struggles with discipline especially around diet and exercise, my hope for ‘liberation’, and my …