Multiple Sclerosis

thoughts on experimental health care, drug companies, MS, hope, diet soda, and God (part 4 of who knows how many)

so i’ve been a little worried, due to some of the stuff that i’ve been writing lately, that our friends think that our entire lives are doom and gloom, nothing but heartache and pain and struggle. while it’s obviously true that we are in a difficult season in our lives with lots of anxiety around

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June 10 Update

so one of the main issues that come along with living with MS is that i don’t actually look sick. in the past year or so since MS has become more front and centre in my life and i have had to tell people that i have the disease, people who have known me for

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thoughts on experimental health care, drug companies, MS, hope, diet soda, and God (part 2 of who knows how many)

So it’s exacty three weeks today, 21 days, from the time I will be in a hospital in Costa Rica, lying on a bed, and having the ‘liberation procedure’ done on me. And the days are going very slowly by. I’m so unable to process all of the thoughts running through my head on a

thoughts on experimental health care, drug companies, MS, hope, diet soda, and God (part 2 of who knows how many) Read More »

May 28 Update

so i thought i’d take a little time every few days over the coming weeks to try and journal my thoughts on my (and erinn’s) life for the past 13 years with MS, my joys and pains along the way, my struggles with discipline especially around diet and exercise, my hope for ‘liberation’, and my

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