This painting by Jack Baumgartner portrays Jacob Wrestling the Angel from the book of Genesis. It’s a central metaphor for this blog – wrestling with life, health, urban issues, and even with God.
MS, Stephen Hawking, crack cocaine, homelessness and other random thoughts. Day 51 of being in hospital
On Thursday this past week I was feeling kinda sorry for myself yet again. According to my 3 hour neuro-psych evaluation my brain in many areas is better than average. Also, when I get my heart rate and blood pressure checked about 400 times per day (give or take) it’s kinda textbook. So my brain and heart are in good shape. But my body sucks. And on Thursday that got to me.
My body took a major hit in January. That’s why I’m here. I’m not dying (well I guess we’re all dying but you know what I mean). If you saw me you may think he’s the same guy that looks like he always did.
But the reality is, I can no longer do things that I could much more easily do just few months back. I’m getting used to yet another new MS normal.
So the whole point of my rehab is to make this new normal as good as possible for not just me but Erinn and Cate too.
As a tiny glimpse into my daily routine, each morning a nurse needs to come to my room, give me my meds, check my blood pressure and heart rate and temperature, get me cleaned up, get me dressed, put a harness underneath me, and then I get lifted using a power lift into my chair.
Well I’m into my third week of being hospitalized now. I’m not gonna lie, it’s really sucked.
I could feel it happening through the month of December. I was simply getting more and more tired and unable to do the things I could normally do. I was falling and needing help getting up. And finally I just simply couldn’t find the strength to get out of bed, so Erinn needed to call the ambulance.
I know this is a particularly hard day and that I won’t always be feeling this way. But today I’ve particularly been focused on an awesome gift Erinn gave me for Christmas. She really is a good gift giver. She gave me this bronze sculpture which is called ‘Jesus the healer’.
The other day when I got to work He was gone. I wondered if He had been moved but someone very quickly told me that Jesus had been stolen. This very heavy, fairly substantially sized bronze sculpture, has somehow been stolen.
Doing a funeral on my birthday was powerful in that everything about that service reminded me of the circle of life. We all have a birthday and a death date. It’s important to mark both of those days I think.
I can see why some folks with disabilities become hermit-like. They build/renovate their homes around themselves in order to fit their needs, and when they go outside realize that their needs can’t be met. So they stay home where it’s safe and comfortable.
Thanks for letting me vent last time. Sometimes letting off a little steam is good for the soul…
And thanks also for the words of caution around grace.
I get it.
I’m fairly certain that when Jesus thinks of me He regularly prays ‘Father forgive him for he knows not what he’s doing’.
So I’m running into some relatively painful moments on my mobility scooter these days.
Yesterday was the proverbial last straw.