What do you want? My PSW asked me that this morning in relation to what I would like to wear today. But the question itself stuck in my brain. What in fact do I want? It did remind me of one of the funniest and yet most profound songs that I know of from my […]
It’s been four weeks and three days now since I have been admitted to the hospital. And some of those days have been the hardest of my life. Erinn and I went to a movie four weeks and three days ago. (We went to see the Aretha Franklin movie which as an aside was pretty
4 weeks and 3 days in hospital Read More »
So on the summer woes front, I’m also seeing lots of pictures of Newfoundland these days. People are on the water fishing, folks are enjoying Newfoundland food, and family are enjoying being with each other. My dad just turned 80, and I was the only sibling who couldn’t be there to celebrate with him. There
My summer woes (2 of 2) Read More »
There is accessible. And then there’s truly accessible. And almost nothing for my needs is truly accessible. When I was in the shelter world, working amongst folks who are homeless, we talked a lot about ‘affordable’ versus ‘truly affordable‘ housing. Affordable housing was calculated based 30% of a person’s income. So if you made $48,000
My summer woes (1 of 2) Read More »
Well, it finally happened. Erinn and I were running some banking errands the other day. It was crazy hot so as she went into a building to get something, I waited in the shade at the next place we needed to go to. As I’m sitting there, minding my own business, watching the world go
The day someone assumed I was homeless Read More »
Well, it was a long winter. Not so much because there was a ton of snow that made me housebound, but because there was just simply no place to go due to this Covid thing. On top of that, my elevator broke. For those of you who do not know my current situation, our basement
On Elevators, Covid, Rhythms, MS, God, and TV (Part 1 of 2) Read More »
My elevator stopped working. Last Thursday night after dinner I went to go downstairs but my lift would not work. So brutal. I had very little idea of what to do. My bed is downstairs and it is almost impossible for me to stay in my chair for the night. I’m so dependant on these
A forced quarantine (without covid) Read More »
It’s March 3. And I am outside, in the park, the sky is blue and the sun is shining, and there is almost no snow on the ground. And on top of that, I got my first vaccination shot on Friday. It all feels as though there is light at the end of this very
Vaccinations, MS, and the Psalms. Read More »
So far this winter the weather gods in Toronto have been smiling on us. That is unless you wanted snow. For me, who gets housebound in snow, I have been so thankful that the sidewalks and roads have not been impossible to navigate in my wheelchair thus far. But I’ve always known that the weather
On grace. And accessibility. (1 of 2) Read More »
As I look out my door and see the sloppy, wet snow dampening the ground and making it impossible for me to go outside on this shitty, depressing first full day of winter, I realize this view lines up with how I’ve been feeling these days; shitty and depressed. Usually I don’t feel the winter
When it Rains it Pours Read More »