Multiple Sclerosis

170 days away from home: An Update

One last major update is that the renovations on our home have finally kicked into high gear. Our basement is now officially demolished and we’re soon about to dig down the floor and do the underpinning so as to make our basement more liveable for me.

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I Gotta Pee- A Poem

Riding my bike the 7km to work
Can’t make it
Down the alley
Behind the dumpster
Ah. Relief

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On finishing 21 years of living with MS.

At Summer solstice I’m reminded that this was around the time of year when I was first diagnosed with multiple sclerosis in 1997.
I’m ‘celebrating’ 21 years of life with this disease.

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Who am I?

Since having to leave work because of my health, I’ve had nothing but time on my hands. And when I have all kinds of time, I have all kinds of thoughts.
Lately the main one running through my head is ‘who the heck am I now?’

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Endings and New Beginnings. Day 114 of being in hospital. (Part 3 of 3)

But here’s where you might think I’m losing it; It all started with a dream. I don’t remember dreams well, including this one, but I woke up the next morning feeling as though it’d be worth checking out becoming a SD myself. Up until that point in time, I never once had this thought.

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Endings and New Beginnings. Day 112 of being in hospital. (Part 2 of 3)

I’ve had so many wonderful experiences and have learned so much these past years that I could never even remember most of it all. It’s been an amazing ride. The folks who live on or near the streets have taught me so much about life, love, gratitude, community, and God. And the people I’ve worked alongside over the years, my colleagues/teammates, have been so kind, generous, educational and supportive to me I wouldn’t know where to begin to say thanks.

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Update on 100 days in hospital, polarities, crosses, and spiritual direction

But the reason for my blog is to talk about my last week of spiritual direction training.
It’s been a wonderful 2-year journey.
I have not been able to travel to Niagara Falls for the whole training week like I have done previously, but I have been able to take in the lectures and my small group gatherings via Skype.

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A New Era. Day 86 of hospitalization

So it’s here. The day when I’ve transitioned into a power-chair has finally arrived. And quite honestly, it hasn’t had the emotional impact I had expected. I actually feel quite good about it, which I did not see coming whatsoever.

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Health Update. Day 67 of hospitalization

My new friend in California, a Salvation Army officer, texted me a question a while back. It was “what is your favorite colour?” I said blue not knowing what would come of it. She then proceeded to knit me a shawl and mailed it to me with a card. Though I’ve never had a shawl, I was deeply touched by it and so have decided to rock it:)

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