So I wrenched my neck. I wasn’t doing anything out of the ordinary. It was Valentine’s Day and Erinn and I were having dinner together. We were reminiscing about how we got engaged on this day more than 20 years ago now. I had cooked what I thought was the most amazing meal ever; barbecued chicken legs. Who wouldn’t want to marry me with this kind of offering, I thought:)
On our 20th anniversary, one year ago now, I was so sick I could barely function. And I felt incredibly guilty to not be able to properly celebrate 20 years married to the incomparable Miss Erinn. When we woke up beside each other the very next day, January 25th 2018, I finally had to admit I cannot go on any longer without help. So I leaned over to Erinn and said it’s time to call an ambulance. That was the very last time I slept in my own bed and woke up next to her.
So, I’ve been made aware that my last blog can be read ad a bit deceiving when it pertains to me moving home.
The move is still close, but not as imminent as I fear I have unintentionally suggested.
I fear I’ve been a tad impatient and a little hasty.
The finish line is definitely in sight but the very last few steps are kind of excruciating.
Hospital Beds and Beeping Machines (a guest piece from my daughter as to how she views life with MS)
By Cate Oxford
I woke to the sound of a knock on my bedroom door. I had been in that strange realm between asleep and awake, when the world is a foggy kind of grey. I looked at the clock, it was early, too early. Too early for everything to be okay. I look to see my mom standing at the door. She opens her mouth.
“Hey, sweetie. So, dad couldn’t get out of bed this morning. We had to call the hospital. I just wanted you to know before the paramedics show up.”
So I turned 49 yesterday. I am now one day into my 50th year. And yes; it’s kind of freaking me out!
So I thought I’d share another slight glimpse into what a day in my life looks like.
At the very beginning of each day I am completely dependent on somebody coming to me and helping me get dressed and out of bed. So if that person calls in sick or is late, I simply need to wait. I am utterly dependent on them.
Well this morning was quite a start to the day. I did my usual morning routine of the three S’s, with some help from my personal support worker of course (Well actually I didn’t shave but you know…)
For at least the past 10 years we as a family have been going to a camp to spend a week together. It has become a part of my annual rhythm of life to go there with other family friends, leave behind the day-to-day grind, enjoy being in nature, and relax. One of my favourite things to do there was to swim every afternoon in the lake. Something about floating around in lake water really does it for me (especially being able to pee guilt free in the water…) I think partially because it evens the playing field. When I’m in the water I don’t need to walk and I seem to be able to swim just fine. Like everyone else, I’m simply swimming around without the need of a mobility device.
The other day one of the people I am getting to know here at Bellwoods showed me her garden. She has been in a wheelchair for her entire life due to a disease that she was born with. She’s very smart and kind though sometimes people look down on her because they judge the disease and not the person.
But I digress…
When I saw this picture for the first time, possibly a decade ago now, it pierced my heart. I just couldn’t forget it. It really spoke to me in that I felt as though it was a picture of my own story. I promised myself that I would someday tattoo that picture on my arm. Yesterday, after way too many years of thinking about it, I finally did it.