So, I’ve been made aware that my last blog can be read ad a bit deceiving when it pertains to me moving home.
The move is still close, but not as imminent as I fear I have unintentionally suggested.
I fear I’ve been a tad impatient and a little hasty.
The finish line is definitely in sight but the very last few steps are kind of excruciating.
So I thought I’d share another slight glimpse into what a day in my life looks like.
At the very beginning of each day I am completely dependent on somebody coming to me and helping me get dressed and out of bed. So if that person calls in sick or is late, I simply need to wait. I am utterly dependent on them.
AnyWho, now to day-to-day life stuff. Our lives are unbelievably full of ups and downs but this has been an unusual week full of extreme highs and lows. I won’t get into the details of either of those except to say that the lows hurt me deeply and the highs encouraged me greatly.
Well this morning was quite a start to the day. I did my usual morning routine of the three S’s, with some help from my personal support worker of course (Well actually I didn’t shave but you know…)
For at least the past 10 years we as a family have been going to a camp to spend a week together. It has become a part of my annual rhythm of life to go there with other family friends, leave behind the day-to-day grind, enjoy being in nature, and relax. One of my favourite things to do there was to swim every afternoon in the lake. Something about floating around in lake water really does it for me (especially being able to pee guilt free in the water…) I think partially because it evens the playing field. When I’m in the water I don’t need to walk and I seem to be able to swim just fine. Like everyone else, I’m simply swimming around without the need of a mobility device.
The other day one of the people I am getting to know here at Bellwoods showed me her garden. She has been in a wheelchair for her entire life due to a disease that she was born with. She’s very smart and kind though sometimes people look down on her because they judge the disease and not the person.
But I digress…
When I saw this picture for the first time, possibly a decade ago now, it pierced my heart. I just couldn’t forget it. It really spoke to me in that I felt as though it was a picture of my own story. I promised myself that I would someday tattoo that picture on my arm. Yesterday, after way too many years of thinking about it, I finally did it.
there is that big giant tree in front of me. I suppose if I knew about trees I would know what kind of tree this was. But as I gaze on it in a form of meditation, I see two things. One is a tree that is reaching to the blue sky at any cost. The other is a tree that is heavy with its burden of the leaves and branches drooping towards the ground.
One last major update is that the renovations on our home have finally kicked into high gear. Our basement is now officially demolished and we’re soon about to dig down the floor and do the underpinning so as to make our basement more liveable for me.
At Summer solstice I’m reminded that this was around the time of year when I was first diagnosed with multiple sclerosis in 1997.
I’m ‘celebrating’ 21 years of life with this disease.
