On Thursday this past week I was feeling kinda sorry for myself yet again. According to my 3 hour neuro-psych evaluation my brain in many areas is better than average. Also, when I get my heart rate and blood pressure checked about 400 times per day (give or take) it’s kinda textbook. So my brain and heart are in good shape. But my body sucks. And on Thursday that got to me.
My body took a major hit in January. That’s why I’m here. I’m not dying (well I guess we’re all dying but you know what I mean). If you saw me you may think he’s the same guy that looks like he always did.
But the reality is, I can no longer do things that I could much more easily do just few months back. I’m getting used to yet another new MS normal.
So the whole point of my rehab is to make this new normal as good as possible for not just me but Erinn and Cate too.
Where Things Stand. Day 44 of being in hospital Read More »
I know this is a particularly hard day and that I won’t always be feeling this way. But today I’ve particularly been focused on an awesome gift Erinn gave me for Christmas. She really is a good gift giver. She gave me this bronze sculpture which is called ‘Jesus the healer’.
I’m still sick in 2017 Read More »
The other day when I got to work He was gone. I wondered if He had been moved but someone very quickly told me that Jesus had been stolen. This very heavy, fairly substantially sized bronze sculpture, has somehow been stolen.
Doing a funeral on my birthday was powerful in that everything about that service reminded me of the circle of life. We all have a birthday and a death date. It’s important to mark both of those days I think.
Thoughts on birthdays, funerals, wheelchair parking, and homelessness. Read More »
I can see why some folks with disabilities become hermit-like. They build/renovate their homes around themselves in order to fit their needs, and when they go outside realize that their needs can’t be met. So they stay home where it’s safe and comfortable.
Accessibility, barber shops, fast food joints, cell phones, and churches (3 of 3) Read More »
As you might know, I have really been struggling with my health. I hate being this sick, and I often wonder why God allows me or anyone else for that matter to live with so much struggle.
Intense (Part 2 of 2) Read More »
So this past week was my third of four week-long intensives for my training to become a certified spiritual director. One of the main tangential things I have learned is that when they call it an ‘intensive’, they’re not screwing around.
Intense (part 1 of 2) Read More »
In 2010 I traveled to Costa Rica with Erinn and Cate for surgery. It was rumored that this procedure could do a lot to alleviate some of the significant symptoms of Multiple Sclerosis that I was experiencing.
That guy that can’t walk Read More »
I’m now in my 4th year of not going to church in the summer. It’s too hot and humid. My tolerance for humidity gets worse each year due to MS related complications. Humidity simply sucks the life outta me. It’s hard enough as it is. So back when I told my doctor about how I feel when I go to my wonderful, yet old and non-air conditioned church, she told me I’d be wise to not go in the summer.
I skipped church today. But had church Read More »