As far as Lent goes, I struggled this year to know what to leave behind in terms of my personal life in preparation for the resurrection and new life of Easter. In meditating about this, I concluded that maybe I might swear a little too much in my private life.
Finally Home! (MS, homecoming, spring, feeling old, Lent, and swearing. Part 2 of 3) Read More »
As I’m waiting in the hallway for that half hour to freeze my bladder, I see that there is a window overlooking the city. So I wheel to the window and wait out my half hour while looking out side.
The CN Tower is there. (After close to 30 years here that tower still takes my breath away). The sun is rising. The sky is blue. I am overlooking the city that I love so much
Bladders, Botox and Ash Wednesday Read More »
So I wrenched my neck. I wasn’t doing anything out of the ordinary. It was Valentine’s Day and Erinn and I were having dinner together. We were reminiscing about how we got engaged on this day more than 20 years ago now. I had cooked what I thought was the most amazing meal ever; barbecued chicken legs. Who wouldn’t want to marry me with this kind of offering, I thought:)
Feeling sorry for myself Read More »
So, I’ve been made aware that my last blog can be read ad a bit deceiving when it pertains to me moving home.
The move is still close, but not as imminent as I fear I have unintentionally suggested.
I fear I’ve been a tad impatient and a little hasty.
The finish line is definitely in sight but the very last few steps are kind of excruciating.
So I thought I’d share another slight glimpse into what a day in my life looks like.
At the very beginning of each day I am completely dependent on somebody coming to me and helping me get dressed and out of bed. So if that person calls in sick or is late, I simply need to wait. I am utterly dependent on them.
Dependancy. 287 days away from home Read More »
AnyWho, now to day-to-day life stuff. Our lives are unbelievably full of ups and downs but this has been an unusual week full of extreme highs and lows. I won’t get into the details of either of those except to say that the lows hurt me deeply and the highs encouraged me greatly.
Exreme ups and downs. Reflections at 275 days away from home. Read More »
Well this morning was quite a start to the day. I did my usual morning routine of the three S’s, with some help from my personal support worker of course (Well actually I didn’t shave but you know…)
Labyrinth Adventures Read More »
For at least the past 10 years we as a family have been going to a camp to spend a week together. It has become a part of my annual rhythm of life to go there with other family friends, leave behind the day-to-day grind, enjoy being in nature, and relax. One of my favourite things to do there was to swim every afternoon in the lake. Something about floating around in lake water really does it for me (especially being able to pee guilt free in the water…) I think partially because it evens the playing field. When I’m in the water I don’t need to walk and I seem to be able to swim just fine. Like everyone else, I’m simply swimming around without the need of a mobility device.
No swimming at the lake this year; 230 days away from home Read More »
The other day one of the people I am getting to know here at Bellwoods showed me her garden. She has been in a wheelchair for her entire life due to a disease that she was born with. She’s very smart and kind though sometimes people look down on her because they judge the disease and not the person.
But I digress…
Day 222 away from home… Read More »
When I saw this picture for the first time, possibly a decade ago now, it pierced my heart. I just couldn’t forget it. It really spoke to me in that I felt as though it was a picture of my own story. I promised myself that I would someday tattoo that picture on my arm. Yesterday, after way too many years of thinking about it, I finally did it.
I will not let you go until you bless me Read More »